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President Obama
 
   
 

PLEASE HELP US OUT!   HERE IS WHAT WE NEED:

1. Please contact your two senators and member of the House of Representatives. Call or send a fax that states, "I support the American Dysautonomia Institute's requests for massively increased non-familial dysautonomia (NFD) research funding.  NFD afflicts more than three million Americans, 80% women and girls."

    Names and addresses of your senators and representative can be obtained, on the Internet, at www.house.gov and www.senate.gov. Or, contact us for information regarding communicating with Congress.

2. Have any community organization or business, with which you are affiliated, endorse our requests for increased research funding.

3. Have your company's donation or grant director contact us, or advise us of her/his name, so that we can do the contacting.

4. Make a donation to us.  See our "Donate Now" web page for further information.

5.  Ask your family and friends to write to their senators and representatives requesting an increase in non-familial dysautonomia research funding.

6. Assist us in obtaining accurate news media coverage about NFD.

7. If you are a physician, ask your drug representative as to her/his company's research efforts as to mediciations to treat NFD.

8. Please contact President Barack Obama, by e-mail (president@whitehouse.gov), or even better by fax, at 202-456-2461. Ask that he support increased NFD research funding.

9. Contact the Office of Management and Budget, by fax, at 202-395-3504.  Ask that it note the waste of over one and a half billion dollars per year in medical expenses, secondary to delays in diagnosing non-familial dysautonomia (NFD). Therefore, point out that increasing NFD research funding, and disease awareness efforts, are cost effective.  

 

Please help us by joining our mascot Sebastian Chase (here pictured on a break from working on his computer) as one of our volunteers.